The Epilepsy Foundation of Minnesota Blog

The Benitez-Gonzalez family had no connection to epilepsy until the day it put 16-year-old Miguel in the hospital, and ultimately took his life. Now, just ten months later, his mother Clarissa uses her energy to raise awareness of the rare form of epilepsy that caused her to lose a child. She is Miguel’s voice now, and along with the other members of Team Miguel will be walking in his memory at the upcoming Rise Above Seizures Walk.

Our last full day of Camp Oz has arrived. It was a bit gloomy and chilly this morning, but I’ll take that weather over Sunday’s humidity any day – and it certainly didn’t stop the campers from getting to their first activities, even the swimmers. The water level has risen about 2-3 feet from the damn break a few days ago, so we moved over to Troy Beach right next door and the cabin groups still got to swim. Our last cabin groups of the day got to participate in the horses, so we sent a group of volunteers to assist with that activity.

Alas, this day finally brought some sunshine for the campers! Waffles were for breakfast today – always a hit with this group. We had a birthday in the house, so we all celebrated that as well.

Tuesday started off with some light rain again, but that did not deter the campers from getting off to a great start to the day! After breakfast, cabins were off to their first activity of the day. Today was the first day the camp store was open for campers, so it was neat to see what caught their eye. Camp staff set up several indoor options for cabins that didn’t want to be in the rain, so various groups voted on this morning activities.

We woke up to our second day of camp with much cooler temperatures. After a breakfast of pancakes, sausage, fruit, and cereal (always a crowd pleaser), a quick rain shower hit camp. But after some cabin time to clean and organize (very needed, even after only one day) the campers were ready to hit the first official activities of the day.

Our first day at Camp Oz was hot, hot hot!  We welcomed 130 campers out to Camp St. Croix for the week in what felt like 120 degree weather.  But everyone sure was troopers!  The campers got settled into their cabins and headed to unit activities where they got to

Ruth Schmitz is a team captain for the annual Rise Above Seizures Walk. Her history with EFMN has led to an appreciation of programs that serve youth and adults with epilepsy. Despite a busy schedule as a student, Ruth is an active volunteer with EFMN. She has witnessed the expansion of EFMN programs and is making an impact on those programs by leading a Walk team in St. Cloud later this summer.

Though Chong was diagnosed with epilepsy at an early age, he didn’t let his seizures get in the way of his education. He earned his Mass Communication:Television Production degree from St. Cloud State University, and even had the opportunity to study abroad in the U.K. As a recent graduate, he turned to EFMN’s new Employment Program for support and advice as he begins hunting for a job that he can make into a meaningful career.

From being diagnosed with a rare neurological disorder at the age of seven to becoming this year’s Winning Kid, Abby Ackerman is an example of what it means to be a Shining Star. Abby has been a member of the Shining Stars program for five years and has transformed into a role model who will travel to Washington D.C. this April to advocate for the epilepsy community through Teens Speak Up!

Neurostimulation Treatments for Epilepsy by: EFMN’s Professional Advisory Board Member Patricia Penovich, MD