Skip to content
Caring for someone with epilepsy can come with unique challenges. To help, the Epilepsy Foundation offers support and resources specific to parents and caregivers, and connects you to other people who are experiencing similar challenges. We offer social events and Connect Groups as a way to meet others affected by epilepsy, and the Shining Stars program helps parents and their kids connect with other families and have fun.
When it comes to caring for someone with epilepsy, we can help with:
Advocating for their needs Driving laws Education assessments Epilepsy disclosure Finding clinics and physicians Medication side effects Mental health and behavioral assessments Social considerations And more
Thriving with Epilepsy
Meet Allen Bauer Jr
A family of seven means a busy household. Jenny and Allen Bauer have five boys, all of whom are school-aged. This includes Allen Bauer Jr, who at six years old was diagnosed with epilepsy.
Support Services for Parents & Caregivers: What To Do After Diagnosis
After a diagnosis of epilepsy, it can be hard to know where to start to make sure your loved one receives proper care. Here are some things to consider right away:
Assess the level of care needed Were they diagnosed by a primary care physician, neurologist, or epileptologist? Request an EEG (electroencephalogram) or MRI These tools can help inform a specific epilepsy diagnosis Create a Seizure Action Plan What should someone do when your child has a seizure and you’re not there? Document what should happen, and give it to the appropriate people (school nurse, teachers, workplace, coaches, etc.) Check out our template action plan resource to help you get started Discuss treatment options with a doctor Track side effects from any prescribed medications Continue to communicate actively with a physician as needed
We're here for you
Get help navigating an epilepsy diagnosis: our Information Services team is here for you and ready with answers to your questions.
Select Language English Español Hmong Afsoomaali Afrikaans Shqip አማርኛ العربية Հայերեն Azərbaycan dili Euskara Беларуская мова বাংলা Bosanski Български Català Cebuano Chichewa 简体中文 繁體中文 Corsu Hrvatski Čeština Dansk Nederlands Esperanto Eesti Filipino Suomi Français Frysk Galego ქართული Deutsch Ελληνικά ગુજરાતી Kreyol ayisyen Harshen Hausa Ōlelo Hawaiʻi עִבְרִית हिन्दी Magyar Íslenska Igbo Bahasa Indonesia Gaelige Italiano 日本語 Basa Jawa ಕನ್ನಡ Қазақ тілі ភាសាខ្មែរ 한국어 كوردی Кыргызча ພາສາລາວ Latin Latviešu valoda Lietuvių kalba Lëtzebuergesch Македонски јазик Malagasy Bahasa Melayu മലയാളം Maltese Te Reo Māori मराठी Монгол ဗမာစာ नेपाली Norsk bokmål پښتو فارسی Polski Português ਪੰਜਾਬੀ Română Русский Samoan Gàidhlig Српски језик Sesotho Shona سنڌي සිංහල Slovenčina Slovenščina Basa Sunda Kiswahili Svenska Тоҷикӣ தமிழ் తెలుగు ไทย Türkçe Українська اردو O‘zbekcha Tiếng Việt Cymraeg isiXhosa יידיש Yorùbá Zulu