The Epilepsy Foundation Blog

An older man in a black zip-up sits in front of a picture window in his living room

Meet Bob Greer

- Thriving with Epilepsy

Change can come at any point in life, and for Bob Greer, there have been many moments of unexpected change. Shortly after getting married Bob was drafted into the Army, and more recently he was diagnosed with epilepsy at the age of 73. With no known cause for his recent seizures and diagnosis, Bob used EFMN’s Information Services and Connect Groups to learn about treatments and how others manage their epilepsy.

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Managing Your Epilepsy: Being an Active Participant in Your Care

- Clinician's Corner

People with epilepsy partner with their health care team in order to bring about better seizure control. In the first article Dr. Rogin emphasized the importance of taking medication as prescribed. Additional means of self-management are discussed in this article.

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A young man with blond hair in a UofM sweater stands next to his mom, smiling. The family resemblance is apparent.

Meet Thomas Putnam

- Thriving with Epilepsy

Thomas and Anna Putnam share a bond unlike any other brother and sister. They may just be the only non-twin siblings to have an SCN8A epilepsy diagnosis in the world. This rare form of epilepsy is due to a sodium channel disorder and affects the 14-year-old Thomas and 11-year-old Anna in similar ways.

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A young girl in bright green leans forward in her wheel chair, smiling

Meet Mara Leroy

- Thriving with Epilepsy Updates from Camp

Mara LeRoy is always looking for her next activity. She recently learned about indoor skydiving, which naturally she had to try, and just finished up her eighth year of adapted downhill skiing. She’s eager now for the snow to back off and plans to attend the Epilepsy Foundation of Minnesota’s (EFMN) Family Camp for the third consecutive year this July. Mara has had epilepsy her whole life, but because she uses a wheelchair to get around she hasn’t been able to attend Camp OZ. She has found Family Camp to be a fun day camp that offers some great activities.

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Close up of two people shaking hands over a table, representing jobs for people with epilepsy.

Managing your Epilepsy (Part 2): Communicating with your Team

- Clinician's Corner

Managing your Epilepsy (Part 2) – Communicating with your Team
By: Professional Advisory Board Member, Tess Sierzant, APRN, CNS

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Portrait of a woman with short hair smiling at the camera against a dark backdrop.

Meet Shar McPherson

- Thriving with Epilepsy

The message Shar McPherson shares with others is that if you want to create change, you need to speak up. Whether it’s to raise awareness, receive help, or push for legislative policies that improve the lives of people with epilepsy, Shar is a vocal advocate and invites others to join her.

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A woman and man with three young children wearing overalls pose for a portrait in front of a lake.

Meet Ellis Weiss

- Thriving with Epilepsy

Being diagnosed with a rare form of epilepsy comes with its own unique challenges, but that doesn’t mean you have to go through it alone. Since their daughter Ellis was diagnosed with Doose Syndrome, Erik and Kendra Weiss have used monthly EFMN Connect Groups to meet others who have a child with epilepsy and learn from their experiences.

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Two prescription pill bottles, one tipped over and spilling out medication.

Managing your Epilepsy (Part 1): Managing your Medications

- Clinician's Corner

Managing your Epilepsy (Part 1): Managing your Medications by: Professional Advisory Board Member, Joanne Rogin MD, FAAN

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Middle-aged man looks directly at the camera in front of a brick cafe wall.

Meet Paul Delaney

- Thriving with Epilepsy Updates from Camp

Paul considers himself lucky, despite having been diagnosed with epilepsy at five years old. In addition to using EFMN’s programs and services, he came looking for ways to help those who weren’t as fortunate as him.

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A woman with wavy blond hair sits crosslegged on the ground outside, holding a stack of children's books

Meet Marianne Richmond

- Thriving with Epilepsy

Marianne Richmond is a picture book author who partnered with EFMN and Barnes & Noble to use her most recent book to raise money for epilepsy. She went through her own struggle with undiagnosed epilepsy at a young age, and has now written a book titled Be Brave Little One to help children to be brave no matter their situation.

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