The Epilepsy Foundation Blog

kourageous kids walk team smiling in tie dye shirts

Carrie Buck – Advocacy for the Sake of Connection

- Epilepsy Walk

Advocacy plays a key role in spreading awareness and reducing the stigma surrounding epilepsy, and advocacy works best when there is a connection between people. Walk captain Carrie Buck knows seeking out connections with others who understand the struggle of epilepsy is the first step in creating more awareness. She

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Teenage girl jumping under balloon arch

Chris Poshek – Walk for Unity and Hope

- Epilepsy Walk

“We walk to be united in the epilepsy community,” EFMN walk captain, epilepsy fighter and advocate Chris Poshek says. And his words perfectly sum up the magic of the EFMN walks: creating unity and providing hope. Chris, who recently turned 50, was diagnosed with epilepsy at the age of 30.

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Team Spike & Wave

Team “Spike and Wave” for a Common Humanity: The Caregivers of Epilepsy Walk to Support and Spread Awareness

- Epilepsy Walk

Cindy Nelson and Dr. Jeff Britton care for epilepsy patients in Rochester, MN. They have both cared for patients with very severe epilepsy cases, working hard each and every day to try and control seizures for their patients. The many years of caring for and seeing the difficulties epilepsy patients

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Headshot of woman in hmong clothing

DEI Committee Member Spotlight – Douachee Lee

- Organization Updates

The Diversity, Equity, and Inclusion (DEI) Committee helps us better serve communities of color, Native communities, individuals living with complex and rare epilepsies, and communities marginalized through social, economic, and political barriers as well as health care providers working most directly with these populations. Douachee Lee is a member of

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Family Camp Day 5 – Can You Guess Which Animal…?

- Updates from Camp

The fifth and final day of virtual Family Camp began with a literal splash of color. The name of the game was tie dye and the aim of the game was creating a new shirt to remember Family Camp for the rest of the summer. Heeding safety warnings to only

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Day 4 wrapup words over picture of plant pots

Family Camp Day 4 – Gang of Green Thumbs

- Updates from Camp

After three days of mixing ingredients, slicing clay, and drawing pictures, Day Four of Family Camp kicked off with a back to basics, all-natural seed planting activity. While first decorating the pots with markers and stickers, campers jumped at the chance to share how they try to protect the earth

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Day 3 Wrap Up Lettering over tin foil sculptures

Family Camp Day 3 – Creating Musical Drawings

- Updates from Camp

We hit the halfway point of Virtual Family Camp with a Day Three packed full of activities. The morning kicked off with an art and music combination called Unspoken Symphony. Campers busted open a pack of special paper with theme ideas and got to work drawing and inventing. Some of

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Family Camp Day 2 – Work of Clay Art

- Updates from Camp

Day Two of Family Camp came and went with some truly serious imagination and creativity. Campers kicked things off with just seven small chunks of clay but after lots of rolling, twisting, and slicing, transformed a baby food jar into a work of art fit for a museum. Under the

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large walk team posing for camera

Edelbrock Family – In Marcaylin’s Memory

- Thriving with Epilepsy

The Edelbrock’s became part of the epilepsy community in 2015 when at 18 months old, Marcaylin started having focal seizures. Unable to get her seizures under control, often causing Marcaylin to stop breathing, she passed away from Sudden Unexpected Death in Epilepsy (SUDEP) in 2018. “We want people to know

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Family Camp Day 1 – Slime and Art

- Updates from Camp

We had some great kids and families from around the state, and even Wisconsin, sign in for the first day of EFMN’s 2021 Virtual Family Camp! Every kid was extremely excited to start digging through their Camp in a Box and finally find out what they were going to make

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