The Epilepsy Foundation Blog

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Epilepsy Awareness Month: Amber’s Blog Post

- Epilepsy Awareness Month

When I graduated as a Registered Nurse 15 years ago, the online resources like nursing apps for your phone, epilepsy websites, and Facebook groups weren’t quite as easy to come by as they are now.

Seizures were scary to me. There were medications that needed to be given daily, certain diets to help with seizures and then there were the medications to give if my client was having a seizure! And that may have been their only diagnosis or only just one of them.

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Epilepsy Awareness Month: Kaylee’s Blog Post

- Epilepsy Awareness Month

I had my first seizure in January of 2020 and was formally diagnosed with epilepsy in April of the same year. In my twenty years of life, I have had 23 surgeries on my brain, heart, stomach, and lungs- all of which are attributed to an underlying condition called hydrocephalus.

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Austin Thomas – Connecting Through Comorbidities

- Thriving with Epilepsy

No two epilepsy journeys are the same. Especially when it occurs with another medical condition, like it does for Austin Thomas. Austin has lived most of his 22 years with autism, but seizures became part of his life at 17 years old when he was diagnosed with epilepsy. “Austin faces

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Clinician’s Corner: Caring for the Caregiver

- Clinician's Corner

By: Dr. Kathleen Rieke, CentraCare The last two articles in this series focused on epilepsy self-management. They encompassed topics such as managing medications, maximizing communication with providers, and taking an active role in seizure management. This final topic focuses on an often overlooked but profoundly important element to the health

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DEI Committee Member Spotlight – Tammy Sinkfield-Morey

- Organization Updates

The Diversity, Equity, and Inclusion (DEI) Committee helps us better serve communities of color, Native communities, individuals living with complex and rare epilepsies, and communities marginalized through social, economic, and political barriers as well as health care providers working most directly with these populations. Tammy Sinkfield-Morey, DNP, RN, PHN, CRRN,

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United In Epilepsy Walk Community – Thriving Together

- Epilepsy Walk Thriving with Epilepsy

Beginning on September 1 in Fargo/Moorhead, and finishing on October 2 in the Twin Cities, the epilepsy community unites to walk in solidarity with one another. After years of coming together to Rise Above Seizures, the Walk name changed in 2021 to the United In Epilepsy Regional Walks. With a

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DEI Committee Member Spotlight – Yafiet Bezabih

- Organization Updates

The Diversity, Equity, and Inclusion (DEI) Committee helps us better serve communities of color, Native communities, individuals living with complex and rare epilepsies, and communities marginalized through social, economic, and political barriers as well as health care providers working most directly with these populations. Yafiet Bezabih is a member of

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Carrie Buck – Advocacy for the Sake of Connection

- Epilepsy Walk

Advocacy plays a key role in spreading awareness and reducing the stigma surrounding epilepsy, and advocacy works best when there is a connection between people. Walk captain Carrie Buck knows seeking out connections with others who understand the struggle of epilepsy is the first step in creating more awareness. She

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Chris Poshek – Walk for Unity and Hope

- Epilepsy Walk

“We walk to be united in the epilepsy community,” EFMN walk captain, epilepsy fighter and advocate Chris Poshek says. And his words perfectly sum up the magic of the EFMN walks: creating unity and providing hope. Chris, who recently turned 50, was diagnosed with epilepsy at the age of 30.

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Team Spike & Wave

Team “Spike and Wave” for a Common Humanity: The Caregivers of Epilepsy Walk to Support and Spread Awareness

- Epilepsy Walk

Cindy Nelson and Dr. Jeff Britton care for epilepsy patients in Rochester, MN. They have both cared for patients with very severe epilepsy cases, working hard each and every day to try and control seizures for their patients. The many years of caring for and seeing the difficulties epilepsy patients

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