Category: Thriving with Epilepsy

The Edelbrock’s became part of the epilepsy community in 2015 when at 18 months old, Marcaylin started having focal seizures. Unable to get her seizures under control, often causing Marcaylin to stop breathing, she passed away from Sudden Unexpected Death in Epilepsy (SUDEP) in 2018. “We want people to know

Caregivers play many roles in the lives of loved ones. For parents who have a child with epilepsy, it ranges from giving medication to working with their school, and yes, taking rides down the “black hole” slide at Family Camp each summer. Meela Keobounpheng, along with her parents Talia and

Brette Garnatz wants to talk about the things we’re too often quiet about. Her message to others with epilepsy is think about and be active in managing your mental health. To women with epilepsy, she shares her difficulties around having a child while managing seizures. Brette’s journey began when she

Everett Forbes found a new way to make friends and socialize over the past year, despite the challenges of limited in-person events. He began attending virtual Teen Connect Groups in early 2020 and now finds the gatherings a regular part of his schedule where he gets to “do fun things”

Scott Buisman has always been open about his epilepsy and absence seizures. He’s had seizures at work in the past and they’ve never been a problem. But a recent seizure caused him to fall and be knocked-out, leading to a hospital visit. With no major injuries he returned to work,

Derrick Dawson is a social person. When he lost his warehouse job in 2019, it meant less time with his friends and co-workers. When COVID forced us to bring organizational events online, it meant he wouldn’t be able to attend the in-person events he enjoys, like Studio-E Art Sessions, Connect

Advocacy can be done in many ways, in many places, and for many reasons. Kyah Altiere has made advocacy an important part of her life since the time she was prescribed toxic levels of her anti-seizure medication. This is when she became an advocate for herself, which transitioned into her

The Bauer family includes parents Jenny and Allen, as well as five boys who range in age. The youngest is Allen Jr, who developed epilepsy after severe head trauma at the age of six. The entire Bauer family supports Allen Jr, and his victories are family victories.

Hannah Poshek had quite the childhood, and now as a teenager, she’s accomplishing even more. She first joined the Minnesota Wild Special Hockey program as a kid, and after gaining greater seizure control as an 8-year-old she started even more activities, like swimming, gymnastics, dance, and competing in Special Olympics.

Bryant’s favorite classes are gym, math, and science. But it’s the group work and big projects that get him excited since it means he will be working with others.