Category: Thriving with Epilepsy

The Epilepsy Foundation of Minnesota periodically features a “Thriving with Epilepsy” story about everyday heroes living with epilepsy in our community. 

Mom holding hands with 10 year old daughter at theme park

Ary Rodeghiero – Finding Support, Friends, and Fun

- Thriving with Epilepsy

Ary Rodeghiero hasn’t had a seizure since 2010 thanks to her medication. However, the medication has its side effects, which has caused her to undergo recent EEG testing to determine the best plan going forward. Although seizures don’t affect Ary’s everyday life, epilepsy does. “We got connected to EFMN by

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Blonde haired mom in a floral shirt smiles with her 12 year old son

Laura Roloff – The Power of Seizure First Aid

- Thriving with Epilepsy

Laura Roloff was diagnosed with epilepsy just one year ago. After meeting with doctors and learning how her life was about to change, she wasn’t sure how to tell her kids. Before she got that chance, Laura had a seizure at home, and her 11-year-old son Keyan was the only

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Two adult women smiling Rise Above Seizures Walk

Meet Danielle Ehresmann

- Thriving with Epilepsy

Danielle’s Story Danielle Ehresmann started having seizures at two years old but wasn’t officially diagnosed with epilepsy until she was five. Her two sisters were also diagnosed at five, meaning the three of them, all triplets, had the same three types of seizures. As she grew older her sisters’ seizures

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A family wearing brightly colored shirts groups together in their backyard for a team photo

Meet Leah Whitmore-Hunstock

- Thriving with Epilepsy

Team Leah is returning for their sixth Rise Above Seizures Walk and may just have their largest walk team yet. They all come together to support Leah, an 8-year-old with epilepsy who wants to be a chef, but in the meantime plays basketball, rides her bike with friends, and of course does some cooking and baking.

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An older man in a black zip-up sits in front of a picture window in his living room

Meet Bob Greer

- Thriving with Epilepsy

Change can come at any point in life, and for Bob Greer, there have been many moments of unexpected change. Shortly after getting married Bob was drafted into the Army, and more recently he was diagnosed with epilepsy at the age of 73. With no known cause for his recent seizures and diagnosis, Bob used EFMN’s Information Services and Connect Groups to learn about treatments and how others manage their epilepsy.

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A young man with blond hair in a UofM sweater stands next to his mom, smiling. The family resemblance is apparent.

Meet Thomas Putnam

- Thriving with Epilepsy

Thomas and Anna Putnam share a bond unlike any other brother and sister. They may just be the only non-twin siblings to have an SCN8A epilepsy diagnosis in the world. This rare form of epilepsy is due to a sodium channel disorder and affects the 14-year-old Thomas and 11-year-old Anna in similar ways.

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A young girl in bright green leans forward in her wheel chair, smiling

Meet Mara Leroy

- Thriving with Epilepsy

Mara LeRoy is always looking for her next activity. She recently learned about indoor skydiving, which naturally she had to try, and just finished up her eighth year of adapted downhill skiing. She’s eager now for the snow to back off and plans to attend the Epilepsy Foundation of Minnesota’s (EFMN) Family Camp for the third consecutive year this July. Mara has had epilepsy her whole life, but because she uses a wheelchair to get around she hasn’t been able to attend Camp OZ. She has found Family Camp to be a fun day camp that offers some great activities.

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Portrait of a woman with short hair smiling at the camera against a dark backdrop.

Meet Shar McPherson

- Thriving with Epilepsy

The message Shar McPherson shares with others is that if you want to create change, you need to speak up. Whether it’s to raise awareness, receive help, or push for legislative policies that improve the lives of people with epilepsy, Shar is a vocal advocate and invites others to join her.

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A woman and man with three young children wearing overalls pose for a portrait in front of a lake.

Meet Ellis Weiss

- Thriving with Epilepsy

Being diagnosed with a rare form of epilepsy comes with its own unique challenges, but that doesn’t mean you have to go through it alone. Since their daughter Ellis was diagnosed with Doose Syndrome, Erik and Kendra Weiss have used monthly EFMN Connect Groups to meet others who have a child with epilepsy and learn from their experiences.

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Middle-aged man looks directly at the camera in front of a brick cafe wall.

Meet Paul Delaney

- Thriving with Epilepsy

Paul considers himself lucky, despite having been diagnosed with epilepsy at five years old. In addition to using EFMN’s programs and services, he came looking for ways to help those who weren’t as fortunate as him.

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