As the parents of a young son with epilepsy, we are humbled by the individuals and organizations who have become a part of our lives and have had a hand in helping raise our child. Our son, Jack, now ten years old, was diagnosed with Lennox-Gastaut Syndrome, a severe form of epilepsy, at the age of four.Read More
Our journey with epilepsy began about 35 years ago when Marcia had a grand mal seizure.
That journey has been difficult many times, when promising medications suddenly lose their effectiveness and break-through seizures occur. The journey begins anew whenever a change in medication is warranted.Read More
When I graduated as a Registered Nurse 15 years ago, the online resources like nursing apps for your phone, epilepsy websites, and Facebook groups weren’t quite as easy to come by as they are now.
Seizures were scary to me. There were medications that needed to be given daily, certain diets to help with seizures and then there were the medications to give if my client was having a seizure! And that may have been their only diagnosis or only just one of them.Read More
I had my first seizure in January of 2020 and was formally diagnosed with epilepsy in April of the same year. In my twenty years of life, I have had 23 surgeries on my brain, heart, stomach, and lungs- all of which are attributed to an underlying condition called hydrocephalus.Read More
This is really important information to know because what to try or not try can make seizures last longer and possibly worse. Because if they’re ever with a person with epilepsy and they start to see them have a seizure, they need to know what makes them safer and what does not.Read More
Hi, my name is Kyah Altiere. For the past 5 ½ years I have been a counselor at a substance abuse clinic. I never realized how much I had in common with people living with opiate addictions. Stay with me here, I’ve never used any illicit drugs. Our clinic isRead More
My journey with Epilepsy started when I was 9 months old. I struggled with epilepsy all my life from being called the Exorcist to being limited on activities I could do. In 2013 I started working on my degree in Human Services. In 2015 I had so many seizures duringRead More
I am a 40-year-old man with epilepsy. I was diagnosed with epilepsy at 8 years of age. Prior to my diagnosis, I knew something was wrong but did not say anything to my parents. When my father first saw me having a seizure, we quickly saw a doctor. The newsRead More
My name is Hafsa and I was first diagnosed with epilepsy when I was one year old. I was too young to notice exactly what was going on with me, but as I got older and went to school, I started to feel embarrassed about having seizures in front ofRead More