The Epilepsy Foundation of Minnesota (EFMN) has a long and rich history of advocacy. From our early efforts to raise awareness to our impactful policy successes—reducing license suspension time after a seizure, enacting Step Therapy Reform, passing Seizure Smart Schools legislation, and most recently, securing coverage for Seizure Detection Devices in Minnesota’s state health insurance programs—we’ve continuously fought for better support, understanding, and resources for people living with epilepsy across the state. These milestones have created an instrumental foundation of progress, but we know our work is far from finished.
Despite the significant strides we’ve made, there is still much to be done to support the growing number of people living with epilepsy in Minnesota. Epilepsy is the most common neurological disorder among children, and one in 10 people will experience a seizure in their lifetime. Yet, despite its prevalence, Minnesota does not have dedicated resources to address the unique challenges faced by people living with epilepsy. The lack of data and specialized resources, combined with barriers to accessing appropriate healthcare, profoundly impacts individuals and families, affecting everything from health and quality of life to education and employment.
Looking ahead to 2025, we are excited about the opportunity to build on our success and elevate epilepsy as a public health priority in Minnesota.
A key pillar of this effort is establishing a state epilepsy program within the Minnesota Department of Health. This program would play a vital role in collecting and sharing essential data to better understand the scope and impact of epilepsy across the state. More importantly, it would improve health outcomes by expanding access to care, education, and community support.
But this initiative goes beyond health—it’s about creating an inclusive Minnesota where people with epilepsy are empowered to thrive, free from stigma and isolation, with the resources and support they need to lead full, meaningful lives.
From left to right: Dr. Michele Peterson, EFMN Board of Directors | Erica Holzer, EFMN Board President | Dr. Patricia Penovich, EFMN PAB President, Board of Directors | Senator Alice Mann | Jenna Carter, Executive Director | Dr. Anna Milz, Board of Directors, Vice President | Julia Page, Lobbyist with Larkin Hoffman.
Over the last few weeks, alongside EFMN Board advocates, I have met with legislators at the Minnesota State Capitol to advance our efforts. I’m pleased to share that every lawmaker we have spoken with has expressed a desire to support our cause. I’m especially excited to report that Senator Liz Boldon has agreed to serve as our Chief Author, with Senators Jim Abeler and Alice Mann signing on in support. In the House, Representative Mary Frances Clardy has agreed to be our Chief Author, and we are working to secure support from additional representatives. Momentum is building, and we remain committed to advancing our bill to prioritize epilepsy as a critical public health issue in Minnesota.
Together, we can make a meaningful difference in the lives of those living with epilepsy. By pushing for this important state program, Minnesota has the opportunity to lead the way in supporting its epilepsy community. As we look to the future, we are excited about the change we can create together, ensuring that all those impacted by epilepsy have the healthcare, resources and support they deserve.
There are several ways you can help drive this important work forward.
- Contact Your Legislators – Call or email your state senators and representatives to share how epilepsy has impacted your life and ask them to support bills SF 1538 and HF 1765. Not sure who represents you? Find out here.
- Make a Donation – Support EFMN’s efforts by making a contribution to help us continue advocating for those affected by epilepsy.
Thank you for being part of this incredible journey as we work together to create a healthier, more inclusive future for all Minnesotans living with epilepsy. Your engagement and support make all the difference, and we are truly grateful to have you alongside us in this important work.
Jenne Carter
Executive Director