The Epilepsy Foundation of Minnesota Blog

The Diversity, Equity, and Inclusion (DEI) Committee helps us better serve communities of color, Native communities, individuals living with complex and rare epilepsies, and communities marginalized through social, economic, and political barriers as well as health care providers working most directly with these populations. Dr. Nitin Agarwal is the Medical

Our journey with epilepsy began about 35 years ago when Marcia had a grand mal seizure.  

That journey has been difficult many times, when promising medications suddenly lose their effectiveness and break-through seizures occur.  The journey begins anew whenever a change in medication is warranted.  

When I graduated as a Registered Nurse 15 years ago, the online resources like nursing apps for your phone, epilepsy websites, and Facebook groups weren’t quite as easy to come by as they are now.

Seizures were scary to me. There were medications that needed to be given daily, certain diets to help with seizures and then there were the medications to give if my client was having a seizure! And that may have been their only diagnosis or only just one of them.

I had my first seizure in January of 2020 and was formally diagnosed with epilepsy in April of the same year. In my twenty years of life, I have had 23 surgeries on my brain, heart, stomach, and lungs- all of which are attributed to an underlying condition called hydrocephalus.

No two epilepsy journeys are the same. Especially when it occurs with another medical condition, like it does for Austin Thomas. Austin has lived most of his 22 years with autism, but seizures became part of his life at 17 years old when he was diagnosed with epilepsy. “Austin faces

By: Dr. Kathleen Rieke, CentraCare The last two articles in this series focused on epilepsy self-management. They encompassed topics such as managing medications, maximizing communication with providers, and taking an active role in seizure management. This final topic focuses on an often overlooked but profoundly important element to the health

The Diversity, Equity, and Inclusion (DEI) Committee helps us better serve communities of color, Native communities, individuals living with complex and rare epilepsies, and communities marginalized through social, economic, and political barriers as well as health care providers working most directly with these populations. Tammy Sinkfield-Morey, DNP, RN, PHN, CRRN,

Beginning on September 1 in Fargo/Moorhead, and finishing on October 2 in the Twin Cities, the epilepsy community unites to walk in solidarity with one another. After years of coming together to Rise Above Seizures, the Walk name changed in 2021 to the United In Epilepsy Regional Walks. With a

The Diversity, Equity, and Inclusion (DEI) Committee helps us better serve communities of color, Native communities, individuals living with complex and rare epilepsies, and communities marginalized through social, economic, and political barriers as well as health care providers working most directly with these populations. Yafiet Bezabih is a member of

Advocacy plays a key role in spreading awareness and reducing the stigma surrounding epilepsy, and advocacy works best when there is a connection between people. Walk captain Carrie Buck knows seeking out connections with others who understand the struggle of epilepsy is the first step in creating more awareness. She