Tag: Shining Stars

The annual Shining Stars event at Nickelodeon Universe in the Mall of America is returning this year on Saturday, September 23. Families from across the state are invited to come and meet others who have a child with epilepsy/seizures. There is scheduled time to connect with other youth, teens, and

Calling all Shining Stars to come make a splash with EFMN! Shining Stars and their families are invited to join in a day of fun at the Big Splash Waterpark at Arrowwood Resort in Alexandria, MN. Your adventure can take you on three 4-story-tall waterslides, float down the Lazy River

Calling all Shining Stars and Shining Stars at heart! Individuals and families of all ages impacted by epilepsy are welcome to join in an afternoon of ice skating at The MN Oval, the largest outdoor refrigerated ice rink in North America. Connect with other families impacted by epilepsy while enjoying

The annual Shining Stars event at Nickelodeon Universe in the Mall of America is returning this year on Saturday, October 16. Families from across the state are invited to come and meet others who have a child with epilepsy/seizures. There is scheduled time to connect with other youth, teens, and

Ary Rodeghiero hasn’t had a seizure since 2010 thanks to her medication. However, the medication has its side effects, which has caused her to undergo recent EEG testing to determine the best plan going forward. Although seizures don’t affect Ary’s everyday life, epilepsy does. “We got connected to EFMN by

Thomas and Anna Putnam share a bond unlike any other brother and sister. They may just be the only non-twin siblings to have an SCN8A epilepsy diagnosis in the world. This rare form of epilepsy is due to a sodium channel disorder and affects the 14-year-old Thomas and 11-year-old Anna in similar ways.

From being diagnosed with a rare neurological disorder at the age of seven to becoming this year’s Winning Kid, Abby Ackerman is an example of what it means to be a Shining Star. Abby has been a member of the Shining Stars program for five years and has transformed into a role model who will travel to Washington D.C. this April to advocate for the epilepsy community through Teens Speak Up!