Advocacy

Programs_Advocacy_Day_at_Capitol__Group_Photo_2014.jpgAdvocate for Issues Related to Seizures

Help end stigma and discrimination while empowering people affected by seizures to be their best advocates.

The Foundation works cooperatively with the Coalition for Children with Disabilities and the Minnesota Consortium for Citizens with Disabilities to align priorities and policies with disability rights groups.

EFMN supports federal public policy and is a member of the Epilepsy Foundation's "Speak Up Speak Out" Campaign. 
 




ADVOCATE NOW BY SENDING AN EMAIL TO YOUR REPRESENTATIVE!
Simply copy the text below and paste it into your personal email to let your representatives know what issues are important to you, and people affected by epilepsy (find your representative here).
 
Greetings,

I’m a constituent of yours who is impacted by epilepsy. Did you know that 1 in 10 people will have a seizure in their lifetime, and 1 in 26 will develop epilepsy?

To raise awareness and educate others, I participate in the Epilepsy Foundation of Minnesota’s advocacy program.  These are some important issues that I’d like to highlight:

  • Seizure Smart Schools – increasing EFMN’s seizure response and recognition training in all Minnesota school districts is important to help students with seizures succeed.
  • Medical Assistance Reform Campaign (HF 559, SF 543) – increase the qualifying income standard and asset limits and raise the excess income standard to support people with epilepsy.
  • Medical Assistance for Employed Persons with Disabilities (SF 238) – repeal premium increases, as they negatively affect people with epilepsy.
  • Sudden Unexpected Death in Epilepsy Awareness (SUDEP) – each year more than 1 out of 1,000 people with epilepsy die from SUDEP, and many people are unaware of the risks.
  • Prior Authorization/Transparency (SF 934, HF 1060) – reduce medication delays, disruptions and confusion to better support people with seizures.

I ask that that you please consider these issues that are of importance to the 60,000 people with epilepsy in our community as you vote in 2015.  Thank you for your time and support.

 

Would you like to be a year-round advocate? Complete the form below.


 Male
 Female
 I have epilepsy.
 I have a child with epilepsy.
 My spouse/partner has epilepsy
 A family member has epilepsy
 I work with people with epilepsy
 Other
 

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