Advocacy Priorities — Prior Years

2018 Advocacy Priorities

Step Therapy (SF 2897/HF 3196)

On May 15, 2018 Governor Dayton signed HF 3196 into law. Implemented on January 1, 2019, this legislation created a process to allow providers to request and exception to a step therapy protocol when they believe it in their patient’s best interest. A provider may use one of the following circumstances when requesting an override:

  1. The drug required under step therapy is likely to cause an adverse reaction, could negatively impact a person’s daily life, or would be physically or mentally harmful.
  2. The patient has tried a drug required under step therapy which is in the same pharmacologic class or has the same mechanism of action.
  3. The patient is currently stable on a prescription drug selected by the doctor while on a current or previous insurance plan.

Best Life Alliance (SF2889/HF 3191)

Founded in 2014, this coalition advocates for Home & Community-based Services (HCBS). HCBS provide individuals with intellectual and physical disabilities needs-based services that allow them to contribute and stay as active and independent as possible. Although both Governor Dayton and the legislature supported the Best Life Alliance legislation, they were unable to find common ground on other items included in the 2018 omnibus budget bill. New legislation was introduced in 2019.

Chloe Barnes Rare Disease Council (SF 2786/HF 2574)

Although both Governor Dayton and the Legislature supported the Chloe Barnes Rare Disease Advisory Council legislation, they were unable to find common ground on other items included in the 2018 omnibus budget bill. The legislation was re-introduced in 2019.

2017 Advocacy Priorities

Medical Assistance Coverage of Stiripentol (SF 1221/HF 808)

Passed in the 2017 session, this legislation requires Medical Assistance to cover Stiripentol under the early periodic screening, diagnosis, and treatment (EPSDT) program when medically necessary for Dravet Syndrome, when all other available covered prescription medications have been exhausted.

Medical Assistance (MA) Spenddown (SF 250/HF 225)

Passed in the 2017 session, this legislation changed Medical Assistance policy so that people with disabilities who depend on MA services can keep more of their own income and savings. A 1% increase in the spenddown was approved.