With 3.4 million people diagnosed with epilepsy in the US and 1 in 26 people developing the disorder in their lifetime, an increasing number of people are being diagnosed with a form of rare epilepsy. Though advances in research and genetics are resulting in an increased understanding of many of these syndromes, there is still much to learn. Rare epilepsies such as the Lennox-Gastaut Syndrome, Doose Syndrome, and others can greatly alter a person’s life and the more we can understand them, the better equipped we are to fight the challenges they can present.
Join the Epilepsy Foundations of Minnesota, Wisconsin, Michigan, and Greater Chicago for the Virtual Rare Epilepsies Conference on May 7th – 8th, 2021. Hear from leading doctors from across the upper midwest as they present on topics including research, therapies, and approaches to living with a rare epilepsy, and support and planning for the future.
May 7 and 8, 2021
Individuals and caregivers impacted by a rare epilepsy diagnosis
(Additional panelists will join us to share their personal perspectives.)
A parent’s journey to becoming a neuroscientist; and a review of how basic research on the cellular and molecular mechanisms of epilepsy reduces mortality and promotes improved quality of life.
An exploration of complementary and experimental therapies, novel applications of existing therapies, and other approaches to managing drug-resistant epilepsy.
A review of recently approved therapies for rare epilepsies and those in the pipeline.
A discussion on the importance of integrating physical, emotional, and cognitive wellbeing into epilepsy care decisions.
Guidance on the many decisions that need to be made across the lifespan to support self-determination and meet the care needs of those with rare epilepsies.
A chance to ask questions about important issues that haven’t yet been addressed, and an opportunity to share ideas and resources.
For any questions regarding registration or about the conference, please call the Epilepsy Foundation of Michigan at 800.377.6226.