All children are special, but we believe that children with epilepsy are Shining Stars!
This program connects youth and teens with epilepsy from across Minnesota and encourages them to reach for the stars. All youth ages 17 and under are invited to become a Shining Star and join us with their family for special events throughout the year.
The Shining Stars program seeks to address the feelings of isolation and difference that can often accompany an epilepsy diagnosis, especially at a young age. We help children connect with others who are facing similar challenges and seek to empower them to embrace their differences and continually strive to meet their fullest potential.
We recognize that epilepsy affects the entire family. In addition to opportunities for children with epilepsy, the Shining Stars program offers parents a chance to connect with each other. We also publish a quarterly e-newsletter with information and resources specific to parents of children with epilepsy.
Thomas and Anna Putnam share a bond unlike any other brother and sister. They may just be the only non-twin siblings to have an SCN8A epilepsy diagnosis in the world. This rare form of epilepsy is due to a sodium channel disorder and affects the 14-year-old Thomas and 11-year-old Anna in similar ways.
The annual Shining Stars event at Nickelodeon Universe in the Mall of America is returning this year on Saturday, October 15. Families from across the state are invited to come and meet others who have a child with epilepsy/seizures. There is scheduled time to connect with other youth, teens, and