A space for people impacted by a rare epilepsy or complex diagnosis to meet others and talk about life updates, challenges, and successes with others who understand the rare epilepsy/complex diagnosis journey. This includes parents and caregivers to children with rare epilepsy, as well as adults. This is a group looking to create peer-to-peer support and connection.
For more information, please contact Angela Bowles Edwards at firstname.lastname@example.org
In order to ensure we can provide the best experience possible, we need a few things from you. Before registering for this group, please make sure you have the following:
- A device that enables you to communicate with others - through a computer, tablet, or phone. A camera is preferred so that you can see others and they can see you, but it is not required.
- Pair of headphones and a quiet space in your home. This is to ensure confidentiality and to provide you with the best experience as a member of the group.