Connect Groups

Epilepsy can be an isolating condition without the support of others, but we believe that no one should have to face epilepsy alone. Connect Groups are an easy way to meet people affected by epilepsy and share experiences in a safe and supportive environment. The structure and intent of Connect Groups vary by location to meet the needs of that community. Sometimes these epilepsy support group meetings have a set topic, while others are an open discussion. Occasionally, we’ll be joined by guest speakers sharing about a subject specific to living with epilepsy. 

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Two young people sit in a wooded outdoor area, talking as part of a group.

Connect Group Guidelines


We feel it’s important to create a place of safety and trust, so we ask that you please follow these Connect Group guidelines.

  • What is said in the meeting, stays in the meeting — This is the essential principle of confidentiality. It’s everyone’s responsibility to make the group a safe place to share.
  • Share the air time — Everyone who wishes to share has an opportunity to do so. No one person should monopolize the group time.
  • Use “I” language — Share from your personal experience. Say “this is what helped me” or “when I was faced with this problem, I …” Please don’t give advice unless asked to.
  • Model respectfulness and kindness — Differences of opinion are okay. Each person should be allowed to speak free from interruptions and side conversations.
  • Adhere to meeting start times and end times — Our meetings are not “open house” style. We often have professional speakers and an agenda.
  • Respond to seizure activity appropriately — The facilitator of your group is trained in seizure first aid. Please follow their instructions and know that if you have a seizure, you’re in good hands.
  • We don’t share participants’ contact information — If you’ve made new friends in your group (and we know you will!), please take it upon yourselves to exchange contact information.
Thriving with Epilepsy

Meet Jacqui Mattson

Seizures can strike at any moment. Imagine living your everyday life seizure-free, and then one day you are faced with a life-altering diagnosis. Meet the Mattson family. After receiving news that their daughter Jacqui was diagnosed with epilepsy at age 14, they learned to cope with her seizures and find support through EFMN.

Jacqui's Story
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Current Connect Groups:


Metro Region:

  • Quarterly Parent Connect: intended for parents of children, of any age, who have epilepsy
  • Monthly Adult Connect: intended for adults with epilepsy
  • Monthly Metro Connect: intended for individuals, family members, and friends affected by epilepsy

St. Cloud Region:

  • Monthly Connect: intended for individuals, family members, and friends affected by epilepsy

Fargo/Moorhead Region:

  • Monthly Adult Connect: intended for adults with epilepsy
  • Monthly Family Connect: intended for families affected by epilepsy

Duluth Region:

  • Monthly Adult Connect: intended for adults with epilepsy
  • Monthly Family Connect: intended for families affected by epilepsy

Rochester Region:

  • Monthly Connect: intended for individuals, family members, and friends affected by epilepsy; rotates monthly between Rochester and Mankato

Upcoming Connect Groups

View all events

03

Jun

Adult Connect Group

Join other adults with epilepsy for connection and support. In June we will be joined by Sonny Chase who will share his journey and his book “Web Was Woven: Epilepsy and Depression.” Light snacks will be provided. Contact Janice Tweet at jtweet@efmn.org or 701.429.1165 with questions.

06

Jun

Connect Group – St. Cloud

We welcome adults, caregivers, and parents affected by epilepsy to join us for a time to connect and support others. This meeting’s topic is “Surgery and Device Options for Epilepsy Treatment” with guest speaker Dr. Rieke from Centracare Neurology Department. Lauren from LivaNova will have information about the VNS surgical

11

Jun

Connect Group – Mankato

Support and resources for individuals, family, and friends affected by epilepsy. No one should face seizures alone. Opportunity to meet others! Light refreshments will be served. Contact Emily Gomez at egomez@efmn.org or 507.287.2103 with any questions.

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Looking for more ways to connect?

Our social events are also a great way to meet other people who understand, and to have some fun!

Social Events