For the latest EFMN updates during COVID-19 pandemic, click here.
Epilepsy can be an isolating condition without the support of others, but we believe that no one should have to face epilepsy alone. Connect Groups are an easy way to meet people affected by epilepsy and share experiences in a safe and supportive environment. The structure and intent of Connect Groups vary by location to meet the needs of that community. Sometimes these epilepsy support group meetings have a set topic, while others are an open discussion. Occasionally, we’ll be joined by guest speakers sharing about a subject specific to living with epilepsy.
Connect Group Guidelines
We feel it’s important to create a place of safety and trust, so we ask that you please follow these Connect Group guidelines.
What is said in the meeting, stays in the meeting — This is the essential principle of confidentiality. It’s everyone’s responsibility to make the group a safe place to share.
Share the air time — Everyone who wishes to share has an opportunity to do so. No one person should monopolize the group time.
Use “I” language — Share from your personal experience. Say “this is what helped me” or “when I was faced with this problem, I …” Please don’t give advice unless asked to.
Model respectfulness and kindness — Differences of opinion are okay. Each person should be allowed to speak free from interruptions and side conversations.
Adhere to meeting start times and end times — Our meetings are not “open house” style. We often have professional speakers and an agenda.
Respond to seizure activity appropriately — The facilitator of your group is trained in seizure first aid. Please follow their instructions and know that if you have a seizure, you’re in good hands.
We don’t share participants’ contact information — If you’ve made new friends in your group (and we know you will!), please take it upon yourselves to exchange contact information.
Thriving with Epilepsy
Meet Jacqui Mattson
Seizures can strike at any moment. Imagine living your everyday life seizure-free, and then one day you are faced with a life-altering diagnosis. Meet the Mattson family. After receiving news that their daughter Jacqui was diagnosed with epilepsy at age 14, they learned to cope with her seizures and find support through EFMN.
We welcome individuals, friends, and families who are impacted by epilepsy to connect and share with one another the experiences, thoughts, and resources that have taken part in your epilepsy journey. In order to ensure we can provide the best experience possible, we need a few things from you. Before
Stay connected during this “safe at home” time and join EFMN’s Teen Connect Group for a virtual gathering and hang out! Teens (13-18 years old) living with epilepsy are invited to sign in to play games, share recommendations, and more while creating connections with peers from across MN, eastern ND,
We welcome parents, caregivers, and guardians of children with epilepsy to connect and share with one another the challenges and victories that you are experiencing along this part of your epilepsy journey. In order to ensure we can provide the best experience possible, we need a few things from you.