SUDEP Action Day was originally launched by SUDEP Action on October 23, 2014, as SUDEP Awareness Day. It shines a light on the largest cause of death in people with epilepsy, helping empower people through increased awareness and raising funds for SUDEP research.
SUDEP is the sudden, unexpected death of someone with epilepsy, who was otherwise healthy. In SUDEP cases, no other cause of death is found when an autopsy is done. Each year, more than 1 in 1,000 people with epilepsy die from SUDEP. If seizures are uncontrolled, the risk can increase to 1 out of 150, making it the leading cause of death in people with uncontrolled seizures.
#SpeakUp2SaveLives is a hashtag used to bring international awareness to SUDEP in order to help save lives. Use #SpeakUp2SaveLives to spread awareness today about SUDEP.
Using the hashtag is important to spread awareness, but the most important actions to take from SUDEP Action Day are to learn about SUDEP and to talk about SUDEP.
The best way to reduce your risk is to speak with your doctor. These are additional strategies to reduce your risk:
Meet and connect with others who have lost someone they love who was impacted by epilepsy. The next Loss of Loved One Virtual Connect Group is December 17, 2020.RSVP
This year help us honor and remember those we loved with epilepsy.Visit Remembrance Wall