We think all youth with epilepsy are special – in fact we think they are Shining Stars! The Shining Star program recognizes youth with epilepsy, making them feel special and connecting them with other youth with epilepsy across the state of MN and Eastern North Dakota. Often youth with epilepsy can feel isolated or alone...the Shining Star program shows them that they are not alone - they are Shining Stars. There are more than 260 Shining Stars in our program!
There is no cost to be a Shining Star and all youth ages 18 and under are welcome. Complete the registration, attach a current photo and tell us a little about yourself: your talents, your hobbies, your epilepsy. We’ll help you shine.
WINNING KID PROGRAM
Shining Stars can become Winning Kids! Our Winning Kid program not only empowers youth, it also creates opportunities for leadership in the epilepsy community and helps spread awareness about seizures.
2013-2014 WINNING KID
Introducing the Epilepsy Foundation of Minnesota's 2013/2014 Winning Kid, Alex Fischer! Alex is 13 years-old and lives with his parents and two younger brothers in Plymouth, MN. Alex was first diagnosed with absence seizures when he was eight years old, but had been having them for years. Through hard work with their neurologist and some breakthrough seizures, Alex has found pretty good management of his seizures and still takes about nine pills a day.
Alex has found great support in his family and friends, which allows him to do the things he enjoys doing: sports, volunteering at his school and hanging out with his friends.
Alex and his family have been involved with EFMN for several years now: Alex attended Camp Oz, attends local family events, is a Shining Star and has a Stroll team. He and his family have volunteered in many different capacities.
Although the reality of his seizures and medications impacts certain areas of life (like school) Alex continues to be a strong advocate for people with epilepsy. "I feel like I am able to cope with living with epilepsy. It helps to have support from my family and friends. I just think of taking pills as an every day deal. Even though I don't like it, I accept it as the cards I have been dealt and make the best of it. I have hope that one day there will be a cure for seizure disorders!"